TRUE ADVENTURE REQUIRES AN UNCERTAIN OUTCOME

December 4, 2010

Going to be tough cycle

As planned, I spent most of Thursday with Nurse Mary and the staff at Doc Q's office receiving my infusion of bug juice.  And, as promised, the dosages were raised to their max....a fact I became well aware of Friday morning.  I woke up Friday feeling pretty good with just a small headache and a now familiar feeling of being a bit on the dingy side of what I claim to be normal for me. 

Around 11A, Lieska and I headed out to go to my work office to pick up some things.  Not a good idea.  We had to turn around within just a few miles because nausea rapidly started to build up.  It was all downhill from there.  Fortunately, I was able to get the nausea under control before having to spend time at the ol’ howling bowl by taking some of the medications given me for just this type of situation.  A couple of rubs on that Lucky Rock undoubtedly helped, too.  After a nap to settle myself, it was time to head to Doc Qs office for hydration and the bone marrow shot.

Saturday brought on some serious chemo brain as they call it when your memory is just trashed.  I am sure I drove the family crazy repeating questions.  The nausea was kept just under the danger threshold most of the day which equates to a day sitting and laying around like a rotting vegetable.  It’s now about 4A and I can’t sleep....part of what is now a normal routine during the chemo sessions.  I was hungry, too, so I just poured a couple cans of nourishment into my stomach through that tube; traditional foods would lead to consultation at the howling bowl I fear.

Doc Q and I met Friday went I was in for the bone marrow shot and hydration.  It is now serious time for her to make some decisions regarding the chemo drug I will receive while undergoing the radiation therapy.  Also, she needed to decide on how I would receive the drug.  The chemo selected, unfortunately, is the one that caused my current nausea but she and Doc C, the Radiologist, believe it to be the one to best enhance the radiation treatment chances of killing off my cancer.  They decided to administer the drug to me over a 5 hour infusion session once every 3 weeks or so during my radiation course.

I also had to make a very difficult decision regarding a second but optional drug to receive during the radiation.  This particular drug has been used with some degree of success to limit some radiation permanent damage to the saliva production organs and the skin in the treatment area.  It has one promised side effect; bad nausea.  Other possible side effects that have been encountered at the radiation center include full body rashes, lowered blood pressure and other issues that have required hospitalization.  Doc Q left the decision up to me.  After wavering a couple times, I decided to forego this drug after deciding I had enough to worry about just trying to get past my phobia issues so that I can do the radiation.  I decided adding optional nausea on top of unavoidable nausea from the mandatory drug just was not worth the odds of any guarantee of limiting radiation damage. 

So, I am told to expect "thick skin" in my neck area. Fine, it will go nicely with my thick head.  I am also now committed to carrying around a bottle of water with me the rest of my life.  Done.  Next? 

December 2, 2010

About that Lucky Rock

When I mentioned the Lucky Rock that was loaned to me, I forgot to describe it.  It is a B I G Lucky Rock weighing in over 3 pounds!


I am one fortunate guys with this much luck on my side, so many good friends and relatives pulling for me, and a strong spiritual base to carry me forward.  Life is Good.


Now I  need to rush off to let Nurse Mary pour that chemo-cocktail into my heart so it can spread it throughout my body to give the cancer a worse time than that juice will me...

Chemo Cycle 3 Begins

Thursday morning I will return to Doc Q's office and spend 6 hours with Nurse Mary kicking off Chemo Cycle 3 by taking two heavy duty drugs by IV through my chest port catheter ; this time full dosage.  At the end of the day, Mary will once again hook up the darned carry-around chemo pump with drug No. 3 - this one now also at full dosage. 

I have sent an email to Forrest Gump asking him to open the box of cholocate so I can see what side ettects, etc. will fill my next 7-14 days.

Thankfully, a very close friend of my in CT has so kindly mailed me her Lucky Rock.  This isn't just any rock.  No way! This rock has been her lucky rock that has saved her from much heartache to say nothing of possible death.  She tells me there is plenty of luck left inside it even though she used up most of the stuff on the outer surface.  That rock sits right next to my head on my bed stand.  The loan of this Lucky Rock is for the remainder of my treatment.  I'll take that for sure.  The Lucky Rock will return to CT after my treatments are over; hopefully still loaded with plenty of lucky to take care of this good friend for years to come.

More time with the Radiation team

I spent another two hours with the radiation team at the cancer center this morning.  We did the sedative again because today was the big day - try and form the mask plastic around my head, neck and shoulders.   Thankfully, with the sedative strong enough to knock out a moose, I was able to lay flat and allow them to form the damn think about me.  Once it was formed, it had to be left in place over me 15 minutes to harden.  The team was wise enough to very quickly cut out eye holes as soon as the plastic mesh material was over my head....that probably saved me from going banadas and destroying all that expensive gear trying to get up and out of that room!

Of course, tonight, after getting that sedative out of my system, I had to check with Lieska to see how much fun I had.  She says things went pretty good, nobody got hurt and the mask-making work is complete. 

Next radiation stop.....the real deal.  We still start my first radiation treatment December 15.  Apparently, cancer does not take time out for Christmas and New Year.  No surprise there...sigh.

Giving Hypnosis a try

Tuesday I had my first session with a Clinical Hypnotherapist - we'll call him Doc B. We have prepared a series of sessions to deal withe my radiation challenges based on a phonbia that keeps me from being able to lay flat with my head and shoulders locked in place. I have no previous history with hypnosis but I am including this work to make sure I do not leave any stone unturned. I will go through a number of session with Doc B; I am eager to see if this work will lead to some relief with this huge problem.